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Real members of myIgANteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
July 1
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myIgANteam

That sounds like a really stressful time, and it's completely understandable to be looking for support right now. While waiting on disability insurance, there are still important steps that can help manage stage 5 kidney disease caused by IgA Nephropathy.

Staying closely connected with your nephrologist is one of the most Show Full Answer

That sounds like a really stressful time, and it's completely understandable to be looking for support right now. While waiting on disability insurance, there are still important steps that can help manage stage 5 kidney disease caused by IgA Nephropathy.

Staying closely connected with your nephrologist is one of the most important things right now. Even without dialysis, your kidney team can:

- Monitor your kidney function regularly
- Adjust medications to help manage symptoms
- Discuss whether dialysis or a transplant may be needed soon
- Refer you to other specialists like dietitians to support your care On the financial and support side, it's worth asking your nephrologist or hospital social worker about:

- Patient assistance programs through medication manufacturers
- The National Kidney Foundation which offers resources and financial guidance
- Local nonprofit organizations that support people with kidney disease
- Medicare — in the U.S., kidney failure can qualify someone for Medicare regardless of age

A hospital social worker can be a huge help in navigating these options while your disability insurance is being processed. Don't hesitate to ask your care team to connect you with one.

July 1

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